55 Épisodes

  1. Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia

    Publié: 12/04/2018
  2. Want to be involved in the Ataxian PROM?

    Publié: 11/04/2018
  3. Cindy DeMint support Group leader making a different

    Publié: 09/04/2018
  4. Joel Sutherland with DYK

    Publié: 08/04/2018
  5. Megan Kaiser discovering latest research.

    Publié: 06/04/2018
  6. Harry Orr about discovering the first Ataxia gene and his latest research. Live at #2018AAC

    Publié: 05/04/2018
  7. Tips for first time attendees to the Ataxia Conference

    Publié: 23/03/2018
  8. Keeping a Medical Binder

    Publié: 11/03/2018
  9. Ataxia Suport Groups They get me !

    Publié: 02/03/2018
  10. Did You Know Suport Groups are extended family and friends

    Publié: 23/11/2017
  11. Did You Know about research

    Publié: 23/11/2017
  12. Did You Know ? National Ataxia Foundation believes that this type

    Publié: 16/11/2017
  13. Did You Know? invisible aspects of Ataxia

    Publié: 20/09/2017
  14. Did You Know ? Annual Ataxia Conference (005)

    Publié: 12/09/2017
  15. Did You Know Podcast - Episode One

    Publié: 31/08/2017

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Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.

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