Ataxia, Did You Know?
Un podcast de Dana Mauro
55 Épisodes
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Alan Thomas is a patient engagement advocate for rare diseases in general and Ataxia
Publié: 12/04/2018 -
Want to be involved in the Ataxian PROM?
Publié: 11/04/2018 -
Cindy DeMint support Group leader making a different
Publié: 09/04/2018 -
Joel Sutherland with DYK
Publié: 08/04/2018 -
Megan Kaiser discovering latest research.
Publié: 06/04/2018 -
Harry Orr about discovering the first Ataxia gene and his latest research. Live at #2018AAC
Publié: 05/04/2018 -
Tips for first time attendees to the Ataxia Conference
Publié: 23/03/2018 -
Keeping a Medical Binder
Publié: 11/03/2018 -
Ataxia Suport Groups They get me !
Publié: 02/03/2018 -
Did You Know Suport Groups are extended family and friends
Publié: 23/11/2017 -
Did You Know about research
Publié: 23/11/2017 -
Did You Know ? National Ataxia Foundation believes that this type
Publié: 16/11/2017 -
Did You Know? invisible aspects of Ataxia
Publié: 20/09/2017 -
Did You Know ? Annual Ataxia Conference (005)
Publié: 12/09/2017 -
Did You Know Podcast - Episode One
Publié: 31/08/2017
Curious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.