108 [S9 E3] Told I couldn’t be autistic: BPD misdiagnosis, mental health negligence and finally getting justice

Naomi Ghafoor is a mental health activist who has spent over a decade battling the mental healthcare system and dealing with misdiagnoses, negligence and systemic abuse, which recently led to her suing her NHS mental health trust earlier this year.  Now 26, she works as a Lived Experience Leadership Officer for a mental health charity in London, UK and is passionate about sharing her experiences and using her voice to uplift and empower others. She was diagnosed autistic at 24. In our conversation we talk about: ➡ Being misdiagnosed with BPD and told she couldn't be autistic  ➡ Finally getting her autism DX after several years of negative experiences in the mental health system ➡ The impact of intensive outpatient treatment for BPD and being unnecessarily medicated  ➡ Suing her NHS Trust over her misdiagnosis and trying to prove their negligence ➡ Her experiences of employment, including with a mental health charity CONTENT WARNING: one very brief mention of a death by suicide and one brief mention of suicidal ideation   Squarepeg is a podcast in which neurodivergent women, and trans and nonbinary people, explore navigating a neurotypical world and share their insights, challenges and successes. I hope that these conversations will be inspiring and thought provoking, open you up to new ways of thinking about being neurodivergent, and help you feel more connected to a worldwide community of people with similar experiences. I’m Amy Richards, and after being diagnosed autistic at the age of 37 I’m now on a mission to learn more about different perspectives and issues around being a neurodivergent adult in a world that feels like it doesn’t quite fit.   EPISODE LINKS: Instagram: www.instagram.com/naomimarlene_ Twitter: https://twitter.com/naomighaf LinkedIn: https://www.linkedin.com/in/naomighafoor/ Her self-produced short video, Creative Therapies as a response to self harm: https://www.linkedin.com/feed/update/urn:li:activity:6990974279504797696/  PMDD and autism: https://www.additudemag.com/pmdd-autism-adhd/   If you'd like to connect or get in touch with Squarepeg, you can find me on: Instagram: https://www.instagram.com/squarepeg.community/ Twitter: https://twitter.com/squarepegautism  Facebook: https://www.facebook.com/squarepegautism/  Or on my website: https://squarepeg.community/    THANK YOU TO MY PATRONS! A HUGE thank you to my amazing patrons, who support my work on the podcast: Abi Hunter, Adam Klager, Alice Kemp, Amy Adler, Amy-Beth Mellor, Amy Sullivan, Anika Lacerte, Annette, Becky Beasley, Ben Davies, Carly Melling, Caroline, Cat Preston, Catrin Green, Charlotte Keen, Cindy Bailey, Corinne Cariad, Dana Bradley, Danielle Warby, Deborah Cullinan, Dennis McNulty, Elizabeth Williams, Erica Kenworthy, Evgeniia Pupysheva, Ewan McNeill, Fiona Connor, Frederike, Galina, Grace, Gwyneth, H Arena, Hannah Breslin, Heather Peake, Hegatronix, Jackie Allen, Jayne Hutchinson, Jeff Goldman, Jen Bartlett, Jo, Julie, Katarzyna Tomaszewska, Kate and Kathryn, Kate Faust, Katharine Richards, Katherine Lynch, Lara, Laura, Leo Ricketts, Lilli Simmons, Linda Brown, Lisa Joy Powley, Liz, LQ, Lyb, Mandy Allen, Marjory Webber, Martine, Melissa Shaw, Meredith L. Freyre, Monica Toohey, NC, Pete Burke, Rebecca, Rebecca Biegel, Sadie Slater, Sarah Ivinson, Sarah Jeffrey, Sarah Swanton, Shauna Schramke, Suzanna Chen, Suzanne, Talia's Nature, Tammie Fabien, Tamsen Staniford, Tessa Valyou, Vic Wiener, Vicki Temple, Victoria Routledge, Wendy Walker, Zephyrine Craster and Zoe Lee.   If you’re enjoying the Squarepeg podcast and would like to help me carry on making new episodes, you can become a member of the Squarepeg community on Patreon from £3 per month: https://www.patreon.com/squarepegpodcast